Talking about our inevitable death and our wishes after the event, is not usually included in recommended light conversation for date night.  Even amongst those who work in roles where you’d expect talking about dying to be something they’re trained in, and despite us all knowing that we will, at some point, die, many of […]

Dear Hormones, What are you playing at? Seriously, I thought we, as a body, were all in this together; fighting against the odds of EDS and Heart Failure, beating them against all expectations and doing a pretty impressive job of it actually.  Then, you took it upon yourselves to go off-piste and take control in, […]