Talking about our inevitable death and our wishes after the event, is not usually included in recommended light conversation for date night.  Even amongst those who work in roles where you’d expect talking about dying to be something they’re trained in, and despite us all knowing that we will, at some point, die, many of […]

I’ve been reminded this week of the first time we saw North Lodge in Myddfai, now our home for almost three years.  It was a rainy day at the end of October 2014 and we knew we belonged here before we got through the gates.  All our previous homes have “spoken” to me long before […]

This summer, I was ready.  Ready to decide where my new life in Myddfai, Carmarthenshire, was going to head in the next chapter.  When you’ve been lucky enough to live a life that has been full and varied (not just because of opportunities but also challenges) then finding the next thing you want to focus […]

Dear Hormones, What are you playing at? Seriously, I thought we, as a body, were all in this together; fighting against the odds of EDS and Heart Failure, beating them against all expectations and doing a pretty impressive job of it actually.  Then, you took it upon yourselves to go off-piste and take control in, […]